A non-profit organization providing a central location for information about this genetic kidney disease. Their site is designed for patients and families, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to ultimately support research aimed at curing the disease.
A program of the Medical Education Institute, Inc., dedicated to helping people live long and live well with kidney disease, with a wealth of free info for patients and professionals.
Established to help kidney patients develop their personal coping skills, special talents, and employability by educating and empowering them to take control of managing their disease.